Progress Comes When We Move Forward Together

We believe meaningful progress starts with listening.

At Sionna, we are committed to learning from people with cystic fibrosis, their families, clinicians, and advocacy partners to better understand the realities of living with CF.

We are committed to deepening this engagement to better understand what matters most to those navigating this complex disease and to ensure those perspectives remain an important part of how we move forward.

CF Stories

Every person’s experience with cystic fibrosis is different. These stories reflect just a few of the many perspectives within the CF community.

Brendan

Brendan

Living with CF

Growing up with CF, Brendan Sullivan once thought making it to 30 would be a victory. Today he is a scientist, a clinician-in-training, and a voice for the CF community — an example of how progress in the treatment of this disease can change not just an individual’s health, but also what people believe is possible for their lives.

Read Brendan's Story
Michael

Michael

Living with CF

Michael shares his experience of growing up with cystic fibrosis, the impact that advances in treatment have had on his life, what unmet need he still sees and why he remains hopeful about the future. His story reflects both the challenges of living with CF and the importance of continuing to build on the progress that has transformed care for so many people with CF.

Watch Michael's Story
Deirdre

Deirdre

Living with CF

Deirdre’s story reminds us that living with CF is about far more than what others can see. She shares the invisible challenges she navigates every day, while reflecting on the hope that continued research brings for the future.

Watch Deirdre's Story

Learning Resources

These resources are provided to help connect members of the cystic fibrosis community with information that may be helpful. Inclusion of a resource does not imply endorsement by Sionna Therapeutics. This list is not intended to be comprehensive, and the resources provided are not intended to replace professional medical advice.

Contact Sionna Patient Advocacy

Are you a person with CF or a caregiver with a question about Sionna’s trials or investigational compounds? We are here to help!

Get in touch with Sionna Patient Advocacy. By contacting us via email, you consent to Sionna Therapeutics responding to your inquiry by email.

Get in Touch with Sionna Patient Advocacy

Please note that it is not Sionna’s intention to process your sensitive information. Unless required under applicable law or in accordance with certain services, we will not request any sensitive information, including health information about any individuals, and we request that you do not provide this personal information to us. In the event we do receive your sensitive information, we will process it only to the extent necessary to comply with your direction and as permitted under applicable law.